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09/05/23 06:38 AM IST

Thalassemia Bal Sewa Yojana

In News
  • Union Minister of State for Health and Family Welfare launched the third phase of Thalassemia Bal Sewa Yojana (TBSY) of the Health Ministry which is being supported by Coal India Limited.
About TBSY
  • Thalassemia is an inherited blood disorder that causes a body to have less hemoglobin than normal.
  • The Union Health Ministry has been implementing the TBSY since 2017 under the National Health Mission (NHM) and had recently completed its second phase in March 2023.
  • The Coal India CSR-funded Hematopoietic Stem Cell Transplant (HSCT) program is a unique initiative aimed at providing a one-time cure opportunity to underprivileged Thalassemia patients who have a matched sibling donor but do not have the financial resources to cover the cost of the procedure.
  • The program has successfully completed 356 bone marrow transplants for Thalassemia patients across 10 empanelled hospitals in India during the two phases.
Thalassemia
  • Thalassemia is a genetic blood disorder commonly characterised by the abnormal production of haemoglobin in the body.
  • The abnormality results in improper oxygen transport and destruction of red blood cells.
  • It has wide-ranging effects on the human body like iron overload, bone deformities and in severe cases can cause heart diseases.
  • The disease has no cure and people living with thalassemia require regular blood transfusions as an effective measure to prolong life.
India's Position
  • India is the thalassemia capital of the world with 40 million carriers and over 1, 00,000 patients.
  • There is no prevention and control programme at the national level.
  • With preventive health checks not being the norm in India, people suffering from thalassemia are unknowingly passing on this genetic disorder to their children.
  • Over 1, 00,000 patients across the country die before they turn 20 due to lack of access to treatment.
Source- PIB

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